Muscled

Muscled is a Two-part hanging installation consisting of three ladder-like sculptural works and twenty-one individual printed works. Accompanying each installation element is a ten-page publication produced in an edition of twenty-five. Muscled takes the emotional response from viewing three specific examples of medical imagery, including comparative muscle biopsies and visualizations of physiologically altered molecular structures from muscle cells, serving as the foundation for generating new imagery based on my experience living with progressive neuromuscular disease. By shifting these images into a new form, they move from a clinical context to an artistic one. In doing so, this body of work offers a route to contend with and heal from the realities of my disabled existence. Realities like the growth of negative feelings about my disability, internalized ableism, the grief felt for lost physical function, and the pain of understanding the mechanism for my death. Muscled has evolved, moving from an image-based response into an experiential one by incorporating paper crumpling. Crumpling paper serves as a physically viable means of forcing myself to contend with the horrible feelings that disability can cause, primarily through embodying those feelings, allowing the mind to shut off in an almost meditation. The crumpling occurs in every instance of the printed works before printing, crumpled with ink on my hands to leave evidence of where I touched, the frustration, anger, and sadness that came up as my weakened hands slowly crushed and creased each page. Muscled serves as a way of removing the mask placed over disability, showing my darkest thoughts about my experience with terminal disease and unveiling my vulnerability without censoring. Removing censorship is the primary intention of the publication, where stream-of-consciousness writing about my disabled self combines with graphic representations of mutated muscle to create a tapestry of repressed emotions given voice. The writing takes on poetic qualities as my fear, anger, and pain are fully revealed and shared. Together, each of these elements intertwines to form a comprehensive glimpse into the sometimes horrible realities of experiencing the loss of ability and impersonal violence of muscular degeneration.